1. ESRC Genomics Network (archive)
  2. Gengage
  3. The Human Genre Project

Innogen · People

Dr. Gill Haddow

Innogen Research Fellow


+44 (0) 131 650 2389


+44 (0) 131 650 6399






ESRC Innogen Centre, The University of Edinburgh, Old Surgeon's Hall, High School Yards, Edinburgh, EH1 1LZ


Gill completed her PhD ('Organ Transplantation and Donation The Paradox of Gifting and Dis/Embodiment') in the Sociology department at the University of Edinburgh in 2001. Gill's research interests include (but are not limited to) the:

  • sociology of the body
  • organ donation and transplantation
  • ethical, legal and social issues around the access and use of medical data and DNA
  • democratic mandate of genetic interest groups
  • regulation of cytoplasmic embryos and xenotransplantation
  • genetics, families and relationships

Gill co-convenes a postgraduate research training course on 'Data Collection', contributes lectures to the post-graduate course Research Design and teaches the unit ‘Death, Embodiment and Identity’ on the undergraduate Sociology 2 course 'Transformations of Self and Society'.

Gill Haddow CV - Aug 2009 (PDF 50.3 kb)


Journal articles

Haddow G., Murray, L. & Cunningham-Burley, S., (2011). Can the governance of a population genetic data bank effect recruitment? Evidence from the public consultation of Generation Scotland. Public Understanding of Science. Vol. 20, No. 1 (January)

Haddow, G., Bruce, A., Sathandam, S., and Wyatt, J (2010) 'Nothing is really safe': a focus group study on the processes of anonymising and sharing of health data for research purposes. Journal of Evaluation in Clinical Practice.

Haddow, G. (2010) 'The Phenomenology of Death, Embodiment and Organ Transplantation', Sociology of Health and Illness, Vol. 24, No. 6 pp 92 – 113. Reproduced with permission in Moore, L. J., and Kosut, M., The Body Reader: Essential Social and Cultural Readings, New York University Press, New York, p. 108-123.

Haddow, G., Bruce, A., Calvert, J., Harmon, S., & Marsden, W. (2010). Not 'human' enough to be human but not 'animal' enough to be animal – the case of the HFEA, cybrids and xenotransplantation. New Genetics and Society, March, 29 (1) 3 - 17

Haddow G. (2009). 'We only did it because he asked us': Family accounts of recruitment to a large-scale population genetic database. Social Science & Medicine. 69(7), 1010-1017.

Roberts, A., Heaney, D., Haddow, G., & O'Donnell, C.A. (2009). Implementation of a national nurse-led telephone health service in Scotland: assessing the consequences for remote and rural localities. Rural and Remote Health.

Haddow, G., Cunningham-Burley, S., Bruce, A., & Parry, S. (2008). Generation Scotland: consulting publics and specialists at an early stage in a genetic database's development. Critical Public Health, 18(2), 139 - 149.

Williams, B., Entwistle, V., Haddow G., and Wells, M., (2008) Promoting research participation: Why not advertise altruism? Social Science and Medicine, Vol 66, 7 1451-1456

Williams, B., Entwistle, V., Haddow G., and Wells M., (2008) Placing evidence in context: A response to Fry’s commentary, Social Science and Medicine, Vol 66, 7, Pages 1461-1462

Haddow, G., O'Donnell, K and Heaney, D. (2007) “Organisational identity and its role in the provision of unscheduled immediate health care”, Journal of Evaluation in Clinical Practice, Volume 13, Issue 2, Page 179-185.

Haddow, G., Laurie, G., Cunningham-Burley, S., & Hunter, K. (2007). Tackling Community Concerns about Commercialisation and Genetic Research: A Modest Interdisciplinary Proposal. Social Science and Medicine, 64, 272-282.

Smith, B., Campbell, H., Blackwood, D., Connell, J., Connor, M., Deary, I., Dominiczak, A.F., Fitzpatrick, B., Ford, I., Jackson, C., Haddow, G., Kerr, S., Lindsay, R., McGilchrist, M., Morton, R., Murray, G., Palmer, C., Pell, J., Ralston, S., St Clair, D., Sullivan, F., Watt, G., Wolf, R., Wright, A., Porteous, D., & Morris, A. (2006). 'Generation Scotland: the Scottish Family Health Study: A new resource for researching genes and heritability.' BMC Medical Genetics, 7, 74

Haddow, G. (2006). Because you’re worth it? The Taking and Selling of Transplantable Organs. Journal of Medical Ethics, 32, 324-328.

Haddow, G. (2005) 'The Phenomenology of Death, Embodiment and Organ Transplantation', Sociology of Health and Illness, Vol. 24, No. 6 pp 92 – 113.

Haddow, G. (2003) 'Donor and non-donor families’ accounts of communication and relations with healthcare professionals', Progress in Transplantation, Vol.13, No.2 pp.1 – 7.

Books and Book Chapters

Haddow, G., Cunningham-Burley, S., (2008) "Tokens of Trust or Token Trust?: The case of Population Genetic Data Collections" in "Trust, Health and Illness" (eds) Alexandra Greene, Julie Brownlie and Alexandra Howson, Routledge pp.152-173.

Edited BookHaddow, G., Richards, M., and Smart, C., (In progress) Reproducing Parents and Kin?: Assisted Reproduction and DNA Testing.

Recent Invited Presentations

Haddow, G., (15 December 2009) Reflections on the Public Engagement of Generation Scotland, Human Genetics Commission, Exeter.Haddow, G., (27 March 2008) In or Out? Organ Donation Debate hosted by Welcome Trust, London.Haddow, G., (10th January 2008) Generation Scotland: Consulting about Public Biobanks, EGAN/Roche Workshop, Basel, Switzerland.Haddow, G., (16th January 2007): Cadaveric Organ Donation: Family Belongings? Scottish Council on Human Bioethics, Edinburgh.Haddow, G., and Laurie, G., (18th August 2006) “Tackling Community Concerns regarding commercialisation in Genetic Research: A Modest Interdisciplinary Proposal, ESRC Genomics Forum Workshop on DNA Databases and commercialization, Edinburgh.

Research Interests

Gill is involved in the following Innogen projects:

  • Generation Scotland/biobanks and public consultation
  • Governing Identity transformations in the post-genomic and transplant age
  • Patient expertise and engagement – the case of GIG (Genetic Interest Group)
  • Patient views of biomarkers

Work in progress:

Holme, I., and Haddow, G., (in progress) 'Understanding Society?' Using biomarkers and government data in longitudinal surveys, Innogen working paper.Masson, K., Haddow, G., and Cunningham-Burley, S. (under review) Translating visions: public consultation and organizational decision-making within Generation Scotland: Scottish Family Health Study, Science, Technology and Human Values.

Research Supervision

Gill has enjoyed supervising undergraduate and postgraduate students with interests in blood donation, tattooing, pregnant teenagers' views of body image, self-mutiliation, the politics of support groups, the NDNAD, xenotransplantation etc.

Gill is currently supervising 4 students.

Sara Bea: In-depth qualitative study on public and stakeholder attitudes to ‘presumed consent’ in organ donation: the meanings and ethical challenges posed by an opt out policy

Tirion Seymour: A sociological exploration of genetic interest groups in Scotland

Aoife McKenna: A sociological study of health-related enhancement technologies in the context of reproduction

Karina Romo: Obstetrical Ultrasound and Pregnancy Loss in the Mexican setting´╗┐