1. ESRC Genomics Network (archive)
  2. Gengage
  3. The Human Genre Project

The Scottish Healthcare Genetics
Public Engagement Network

About Gengage

Gengage represents a unique and innovative initiative in public engagement around science and medicine.

It aims to draw on Scotland’s strengths in science, medicine and social science, as well as its strong traditions of integrating academia and civil society.

Background and funding

Gengage (the Scottish Healthcare Genetics Public Engagement Network) was established in June 2008 following recommendations in the Review of Genetics in relation to Healthcare in Scotland, chaired by Sir Kenneth Calman and published in 2006.

The review recommended that a mechanism be established to pull together and coordinate the efforts already under way in Scotland to increase public awareness, dialogue and debate on issues to do with healthcare genetics. Gengage is this mechanism and has a role to "coordinate and facilitate activity in the important area of public engagement in genetics."

The Scottish Government Health Department funds Gengage’s activities in response to the recommendations of the Calman review. Gengage is managed by the ESRC Genomics Policy and Research Forum based at the University of Edinburgh.

Structure

The overall direction and activities of Gengage are guided by a steering group.

There are three sub-groups, each with a particular area of interest on which to focus. Each is chaired by a member of the steering group, ensuring a coordinated approach to the work of the network as a whole.

Other organisations

The following organisations are also closely involved in the implementation of the recommendations of the Review of Genetics in relation to Healthcare in Scotland.

Links

Contact

Gengage is based at the ESRC Genomics Policy and Research Forum at The University of Edinburgh.

Gengage

ESRC Genomics Policy and Research Forum

The University of Edinburgh

College of Humanities and Social Science

St John’s Land

Edinburgh EH8 8AQ

Telephone 0131 651 4750

Fax 0131 651 4748

How to find us

The Genomics Forum is situated on the Royal Mile (Canongate), a short walk from Edinburgh’s main railway station (Waverley), the Scottish Parliament, the Palace of Holyrood House and Edinburgh Castle.

Glossaries

A number of glossaries are available on the internet that will help to explain some of the terms used on this website.

The links below will take you to the websites of other organisations, where you will find the relevant glossaries.

Accessibility

The approach taken on this website to improving accessibility follows the principles set out by WebAIM.

Steering group

The Steering Group's purpose is to oversee and advise on Gengage's activities. Its primary functions are...

• To agree Gengage's annual objectives and monitor and review progress against them

• To advise on current and future activities of the network

• To ensure the proper use of Gengage's budget

Members of the Steering group

Prof Kenneth M Boyd – Chair

Professor of Medical Ethics at The University of Edinburgh

Prof Sarah Cunningham-Burley – Chair, Research sub-group

Professor of Medical and Family Sociology, also a co-director at the Centre for Research on Families and Relationships (CRFR), University of Edinburgh

Prof Neva Haites – Chair, Health Policy sub-group

Professor in Medical Genetics at the University of Aberdeen, Vice Principal, Head of the College of Life Science and Medicine and an Honorary Consultant Clinical Geneticist at Aberdeen Royal Hospitals NHS Trust

Prof Jack Jackson – Chair, Education sub-group

Retired Assistant Chief Inspector, HM Inspectorate of Education and visiting professor of curricular studies at the University of Strathclyde

Prof Vikki Entwistle

Associate Director of the Social Dimensions of Health Institute (Universities of Dundee and St Andrews) and Reader within the Alliance for Self Care research

Prof Gerard Graham

Division of Immunology, Infection and Inflammation, University of Glasgow

Prof Mary Porteous

Consultant Clinical Geneticist and the lead clinician for the clinical and laboratories services in South East Scotland

Dr Steve Sturdy – Grant holder

Deputy Director of the ESRC Genomics Policy and Research Forum based at The University of Edinburgh

Education sub-group

The Education sub-group has two main aims:

• To provide a point of liaison and communication with those designing and delivering genetics education within the range of educational institutions in Scotland from schools through to higher education

• To provide formal training and other opportunities for shared learning which will increase capability and capacity for public engagement in healthcare genetics

Members of the Education sub-group

Prof Jack Jackson – Chair

Retired Assistant Chief Inspector, HM Inspectorate of Education and visiting professor of curricular studies at the University of Strathclyde

Dr Marit Boot

Former science engagement officer at the Office of the Chief Scientific Advisor of the Scottish Government, now Network Manager of the network for Children with Exceptional Healthcare Needs (CEN).

Dr Sheelagh Frame

Research scientist Cyclacel Ltd

Dr Sharon Macnab

Science Learning Manager at Glasgow Science Centre

Mrs Marjorie Smith

Biology Teacher at Dollar Academy and Development Officer for SAPS/SSERC

Health Policy sub-group

The Health Policy sub-group has two main aims:

• To facilitate dialogue with policy makers at national, regional and local level

• To inform and connect those charged with producing and delivering health-related information and materials in Scotland

Members of the Health Policy sub-group

Prof Neva Haites – Chair

Professor in Medical Genetics at the University of Aberdeen, Vice Principal, Head of the College of Life Science and Medicine and an Honorary Consultant Clinical Geneticist at Aberdeen Royal Hospitals NHS Trust

Dr David Aitken

Consultant Clinical Scientist, Honorary Senior Lecturer, University of Glasgow and Head of Biochemical Genetics in the Duncan Guthrie Institute of Medical Genetics at Yorkhill

Miss Natalie Frankish

Genetic Alliance UK, Development Officer - Scotland

Mr Craig Gilbert

Research Ethics Coordinator for Scotland

Dr Lesley Wilkie

Director of Public Health, NHS Grampian

Dr Mike Winter

Medical Director NHS Scotland

Research sub-group

The Research sub-group has two main aims...

• To provide a means for social scientists and others with an interest in healthcare genetics to exchange knowledge and experience

• To promote research on and evaluation of public engagement activities both within and beyond Gengage

Members of the Research sub-group

Prof Sarah Cunningham-Burley – Chair

Professor of Medical and Family Sociology and also a co-director at the Centre for Research on Families and Relationships, University of Edinburgh.

Prof Harry Campbell

Professor of Genetic Epidemiology and Public Health, Public Health Sciences section, Division of Community Health Sciences, The University of Edinburgh

Prof Blair H. Smith

Professor of Primary Care Medicine and Head of Section, General Practice and Community Medical Education, University of Aberdeen.

Prof Steve Yearley

Director of the ESRC Genomics Policy and Research Forum at the University of Edinburgh

Professor Douglas Blackwood

Professor of Psychiatric Genetics and Honorary Consultant Psychiatrist, Division of Psychiatry, University of Edinburgh

Dr Robin A Morton

Knowledge Transfer Officer at the Centre for Cognitive Ageing and Cognitive Epidemiology, and Project Manager at Generation Scotland