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Biomedicine, health and identity is one of four EGN research programmes designed to present scientifically informed and policy-relevant research to key UK and international audiences. This theme focuses on the anticipated health and personal-identity benefits that are thought to flow from the contemporary biosciences. For example, it is commonly suggested that an understanding of the human genome will allow treatments to be “personalised” to specific patients, making the procedures safer and more effective. At the same time, it is proposed that developments from stem-cell research will allow the emergence of “regenerative medicine” – the re-growth of damaged or lost tissue. This theme asks how medical research and clinical practice are responding to the new life sciences, and examines some of the implications for equality and access to biomedical services.

Project Topics include:

Susceptibility Genes – how do professionals, planners and citizens view the genomic basis of health and ill-health?

Behavioural genetics and psychiatry in the genomic age

Prenatal testing – its ethical and sociological implications

Belief systems and religious and ideological differences in approaches to genetic technologies

Delivering better services to citizens in developed and developing countries

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21st Century Genetic Health
Gill Haddow

Between the clinic and the laboratory: Biomedical research in praxis
Christine Hauskeller and Dana Wilson-Kovacs

Biobanks, Commerce and Public Trust
Nadja Kanellopoulou

Biological and Biomolecular Resource Infrastructure (BBMRI)
Ruth Chadwick

Blood work: Investigating Cultures of Biomedicine in Malaysia and Britain
Janet Carsten

Cancer Biobanking in Practice
Neil Stephens

Claims-making in nutrigenomics: A policy-driven analysis of marketing and media (2006-2009)
Paula Saukko

Complex risks and testing for genetic thrombophilia: a case study on genes and common disease (2003-2005)
Paula Saukko

Dignity in Practice
Win Tadd, Alexandra Hillman

Ethics in Practice: An ethnographic study of decision-making and their implications in dementia care
Alexandra Hillman

Eurocancercoms
Ruth Chadwick

Evaluation of Genetic Services
Rod Taylor

Expectations and Controversy in the Making of Markets in Direct-to-Consumer (DTC) Personal Genomics
Chris Groves, Adam Hedgecoe, Richard Tutton

Familial Hypercholesterolaemia: cascade testing
Jane Miller

Feminism and Critique
Maureen McNeil

Fetal/maternal cell transfer, non-invasive prenatal diagnosis and naturally occurring micro-chimerism
Susan Kelly

Genetic Databases
Ruth Chadwick, Mina Bhardwaj

Genetics, Health and Identity
Angus Clarke, Srikant Sarangi

Genetics, Health and Identity
Angus Clarke, Srikant Sarangi

Genome Wide Association Studies
Adrian Mackenzie

Genomics and Psychiatry
Katie Featherstone

Genomics and Psychiatry
Andrew Bartlett

Innovation in Pharma and Equity in Health
Maureen Mackintosh & Luigi Orsenigo

Innovation, Development and Global Health: Regulation and Global Pharmaceuticals
Chataway, J., Gehl Sampath, P., Kale, D., Tait, J. and Wield, D.

Innovation, Development and Global Health: The role of partnerships and innovation systems and strategies for enhancing capacities
Chataway, J., Hanlin, R., Smith, J. and Wield, D.

Innovation, Development and Global Health: Scientific Labour Markets and the Diffusion of Knowledge
Chataway, J., Kale, D., and Wield, D.

Internationalisation of Indian Pharma
Dinar Kale

Is easier better? Public attitudes towards non-invasive pre-natal testing (2008-2010)
Susan Kelly and Hannah Farrimond

MAGNet - Medicine and Genomics Network
Nadja Kanellopoulou

MAGNet - Medicine and Genomics Network
Nadja Kanellopoulou

Media, Culture and Genomics
Jenny Kitzinger, Maureen McNeil

Multiple meanings of a rare genetic disorder: 22q11 deletion syndrome (PhD Thesis)
Rebecca Dimond

Parenting in the Genetic Age: Parents, impairment and dilemmas of responsibility
Susan Kelly

Patient interpretations of family history in evaluating the risk of heart disease in general practice (2006-2007)
Paula Saukko

Promising Personalized Medicine: Futures Past and Present
Richard Tutton

Promoting Excellence in All Care Homes
Win Tadd, Martin O'Neill, Simon Read

Race, Medicine and Scientific Research
ESRC Genomics Policy and Research Forum

Reorganisation of Innovation in the Health Care Life Sciences
James Mittra

Selling genetic tests online: User perspectives on direct to consumer psychiatric genetic tests
Susan Kelly, Sally Wyatt and Anna Harris

Sociological study of Familial Hypercholesterolaemia (FH) cascade testing
Dr Jane Miller

The Drivers of Biotechnology Firm Innovative Performance in the Health Care Sector
Alessandro Rosiello

The Gendering of Biographical Writing and the History of Genetics
Maureen McNeil

The Scottish Family Health Study
Gill Haddow

The Transgenerational Communication of Genetic Information
Angus Clarke, Paul Atkinson, Maggie Gregory, Rebecca Dimond, Paula Boddington

The UK Stem Cell Bank: An Institutional Ecology
Neil Stephens

The use of family history in the risk assessment and primary prevention of heart disease (2005-2008)
Paula Saukko and Hannah Farrimond

Translational Research: Conceptualising and Practicing Translation
James Mittra

Understandings of Type 2 Diabetes in ‘at risk’ families
Hannah Farrimond