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Title: Mrs. Job Title: PhD Student Tel: 029 2087 0025 Fax: Email: needsj@cardiff.ac.uk Building: 6 Museum Place Room Number: 1.02
Jacqueline’s PhD was awarded in 2010 for a qualitative study of a clinical management and research clinic for Huntington’s disease, a fatal genetic disorder. The study showed how the disease has moved from being simply considered ‘genetic’, to a framework of neuroscience which has allowed translation of further new technologies in the search for treatment or cure. The move includes patients and families as participants in global research created from local data collection, illustrating how local clinic activity feeds into the achievement of much larger research objectives via standardisation of procedures. The co-operation of patients and carers is seen as an extension of a ‘thought-collective’ (Fleck, 1932) which currently seeks and approves the use of foetal tissue in neuro-transplantation.
Her other interests include most areas of the Sociology of Health and Illness, Qualitative Research Methods, the Sociology of Neuro-Science and Genetics, Health and the Finance Industry.
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