8.30-9.30

Registration

9.30 - 9.45

Welcome by Christine Hauskeller and Jude England

9.45 - 10. 45

Keynote 1: Anne Fausto-Sterling

The ontogeny of sexuality

10.45 - 11.15  Refreshments

11.15 - 12.45

Parallel 1

Genomics and Identity Politics
Steve Sturdy (Genomics Forum) - Genetic suspects: Identity politics and the forensic uses of DNA
Gill Haddow (Innogen) - Keeping it in the family: Relationships and genetic technologies in the UK
Richard Tutton (Cesagen) - Patient advocacy, biosociality and other identity practices, Christine Hauskeller (Egenis) - Human identities in the age of genomics. Agency and institutional power

Synthetic Biology
Dirk Stemerding (Rathenau Instituut) - Towards a European policy for the governance of ethical & legal issues of synthetic biology for human health
Jane Calvert/Daisy Ginsberg (Innogen) - Synthetic aesthetics: synthetic biology, social science, art & design
Jochem Zwier (CSG) - Viral biomaterials as biomimetic tools for human enhancement 

Biosociality and biocitizenship
Angela Marques Filipe (LSE) - People, numbers and rarity: Biosocial platforms in Portugal and Europe
Eric Vermeulen (VUmc Amsterdam) - Genetic testing and biosociality revisited
Tamar Sharon (Maastricht) - Between choice and discipline: Exploring the unexpected normativity of healthy citizenship

Emerging prenatal genetic testing technologies: New technologies, old debates?
Chair: Heather Skirton
Susan Kelly (Egenis) - Non-invasive prenatal testing technologies, DTC tests for fetal sex and the limits of bioethics
Hannah Farrimond (Egenis) - What do the public think of new non-invasive prenatal tests? A Q-methodology study
Heather Strange (Cardiff) - Emerging prenatal genetic testing technologies: ethical issues and the need for empirical research  

12.45-1.45  Lunch

1.45 - 3.15

Parallel 2

Genomics Forum: Art-science as public experiment
Peter Arnott - Whose view of life? 
Matthias Wienroth/Pippa Goldschmidt - More than mirrors at the focal point? Art-science as methodological experiment

Lorraine Kerr/Christine Knight - Lab notes: Exploring biology and robotics through music
Jacqueline Chin - Discussant

Data use in biobanking
Gail Henderson (University of North Carolina) - Not a Simple Story: How biobanks protect contributors and promote research

Gabrielle Bertier (CRG) - Professional and family attitudes regarding large-scale genetic information generated through next generation sequencing in research
Sarah van Teeffelen (VUmc Amsterdam) - Parents' opinions on storage of heel-prick cards for research purposes  

Calibrating DNA Technologies
Barbara Prainsack (Brunel) - Forensic technologies and the image of European crime   Christopher Lawless (Edinburgh) - Bio-legality and Low Template DNA profiling  

Dana Wilson-Kovacs (Egenis) - The rise of the machines: Anticipation, provision & demand in the expansion of ADAPT

New models of consent
Arndt Bialobrzeski (FAU) - How to differentiate and evaluate common good and public good: Making implicit assumptions explicit
Sarah Cunningham-Burley (Edinburgh) - Public responses to data-linkage for health research: Implications for genomics
Eline Bunnik (Erasmus umc) - A model for informed consent in DTC personal genome testing 
Henri Jautrou (Toulouse) - DTC genetic testing: commercialisation and regulation

3.15 - 3.45  Refreshments

3.45 - 5.15

Parallel 3

The politics of race and family
Jonathan Kahn (Hamline) - Mandating race: How the USPTO is forcing race into biotechnology patents
Venla Oikkonen (Helsinki) - Rethinking family: The cultural politics of DNA kinship

Ernesto Schwartz Marin (Manchester) - Postcolonial biopolitics and biocolonialism:  Governance and the protection of ‘genetic identities’ in Mexico and Colombia

Forensic uses of DNA
Sara Katsanis/Arthur Eisenberg (Duke) - DNA identification for human trafficking prevention  
Mairi Levitt (Lancaster) - 'Genes don't control a person - the person does': Genes, environment & responsibility for behaviour
David Wyatt (Egenis) - Contamination and DNA: Using dirt to demonstrate expertise in crime scene investigation

Innogen: Food securities: Conflicts and controversies  

How innovation agendas are established
Jan Van Baren (Radboud) - Naturalisation of cultural categories in bioinformatics practices 
Imme Petersen (Hamburg) - How to handle data: The role of technological infrastructure in post-genomic research
Lise Bitsch (CSG) - The innovation journey of genomics and research on asthma and cardiovascular disease

5.30 - 6.30

Keynote 2: Ann Lingard

"Are you sitting comfortably?": Telling stories about genetic and other 'difference'.

From 7.30

Conference dinner at the Royal College of Physicians

11 St Andrews Place, Regent's Park, London 

8.30 - 9.00  Registration

9.00 - 10.30

Parallel 4

Beyond genetic determinism: Interpreting the personal in the age of DTC genomics
Sandra Soo-Jin Lee (Stanford) - Getting personal: The politics of hope in the age of consumer genetics
Anna Harris (Egenis) - Intersecting determinisms – genetics goes online
Barbara Koenig (UCSF) - Encountering the new genomics: reflections on fieldwork in personalised medicine
Chris Groves (Cesagen) - Walking the tightrope: Clinical and personal utility in personal genome susceptibility

Technology, crisis and transition
Christophe Bonneuil (CNRS) - Inventing the bioeconomy: Environmental crisis, ‘biological added value’ and biotechnology’s cornucopian promises in the 1970s
Larry Reynolds (Cesagen) - Technology, crisis and transition. Eco-Schumpertarian promise and imagined bioeconomies – from the 1970s to the current crisis
Monika Gisler (ETH Zurich) - Exuberant innovation: The Human Genome Project

Social issues arising in animal biotechnology and genomics
Corrina Gibbs (Innogen) - Understanding new developments in GM animal technologies, and their practical and regulatory implications
Neil Stephens (Cesagen) - Show us the meat: Negotiating facts, fictions and promises in images of meat grown from stem cells
Ann Bruce (Innogen) - Can genomics deliver solutions to reduce greenhouse gas emissions from cattle and sheep?

Disease classification and law
Jane Miller (Inserm) - Patient experiences of Familial Hypercholesterolaemia within the all-Wales cascade genetic testing programme
Nadine Levin (Oxford) - Shifting disease classifications and boundaries of normal/abnormal in ‘omics’ research practices
Anna Pigeon (Inserm) - The French bioethics law regarding genetic testing: new duties to inform family members

10.30-11.00 Refreshments

11.00 - 12.30

Parallel 5

Whole genome sequencing
Debra Skinner (University of North Carolina) - An ethnography of the result: How findings from whole exome sequencing are made
Anna Pokorska-Bocci/Alison Hall (PHG Foundation) - The impact of whole genome sequencing on health systems and society: what challenges lie ahead?
Paula Saukko (Loughborough) - Fragmentation, affect and 'lifestylization' of medicine: An autoethnography of an online whole genome test
Effy Vayena (Zurich) - Direct-to-consumer genetic testing in Switzerland: experiences of early adopters

Imagining & materialising technoscientific lives in the postgenomic era
Joan Haran (Cesagen) - Popular fiction and technoscientific imaginaries: genes, gender and genre
Maureen McNeil (Cesagen) - The Right Stuff: genomic identities and genomic heroism
Kate O’Riordan (Sussex) - Database imaginaries and the gay gene: from hypothetical markers to data

Egenis: Dividing the biological world 

Screening 1: Ante- and post-natal screening and testing
Angus Clarke (Cardiff) - Stigma, self-esteem and reproductive confidence 
Celine Lewis (Genetic Alliance) - Non-invasive prenatal testing – a new dawn in antenatal care 

Shenaz Ahmed (Leeds) - Interpretations of informed choice in antenatal screening: a cross-cultural Q-methodology study

 12.30 - 2.00  Lunch and Poster Presentations

2.00 - 3.00

Keynote 3: Margaret Lock

Genes as tools for the prevention of Alzheimer's disease  

3.00 - 4.30

Parallel 6

New models of governance
Etienne Vignola-Gagné (Fraunhofer ISI/University of Vienna) - Translational research: A new form of governance
Conor Douglas (VUmc Amsterdam) - Biobanking, bio-objectification and the reconfiguration of governance models  

Brett St Louis (Goldsmiths College) - Postracial science, racial reproduction and the constructionist's dilemma   

Cesagen: Reconfiguring interdisciplinary research  

Narratives & mythologies
Chair: Joan Haran

Kyriaki Papageorgiou (independent) - DNA Activation and the evolution of human consciousness: Tales of fact and fiction from Egypt & beyond
Martin Döring (Hamburg) - Foundational 'mythologies' of systems biology: Narratives of an emerging discipline in the biosciences

Screening 2: Ethics and attitudes to carriers
Felicity Boardman (Warwick) - Attitudes towards and uses of carrier and prenatal testing   by families living with Spinal Muscular Atrophy
Ari Haukkala (Helsinki) - Experiences of information delivery and direction to healthcare after heritable long QT syndrome finding
Jessica Mozersky/Dena Davis (Penn CIGHT/Lehigh) - Liberal eugenics, BRCA breast cancer and Ashkenazi Jews

4.30 - 5.00  Refreshments

5.00 - 6.00

Keynote 4: Celeste Condit

Can humans use our 'more than rational' capacities to steer our species-making capacities?